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MEGAN!
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ONE OF THE 2006 TELETHON FAMILIES!

MEGAN ASSINK - Megan Assink, 4,of
Grand Rapids, Mich., who's Affected by
Pompe's Disease(Acid Maltese
Deficiency), is among the First People to
receive Myozyme, the First Definitive
Treatment for the Rare Neuromuscular
Disease. The Drug was Developed by
Benzyme Corp. with MDA's Assistance, and
was approved this Spring by the FDA. People
with Pompe's Disease experience Progressive
Weakness of Voluntary and Respiratory Muscles.
Until now, most Children with the Infantil Form of
the Disease have had a Life Expectancy of about
Two Years. Researchers expect that Myozyme,
which replaces the Missing Enzyme, should
significantly extend the Strength and LifeExpectancy.
Megan's Sister, Lesley, died of Pompe's in 2002 at Age 9.

LUKE CHRISTIE & JERRY LEWIS!!
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ONE OF THE 2006 TELETHON FAMILIES!

LUKE CHRISTIE & JERRY LEWIS - MDA
National Goodwill Ambassador, Luke
Christie, a 13-year-old from Due West,
S.C., has Spinal Muscular Dystrophy
(SMA), a Progressive Motor Neuron
Disease that causes Weakness in the
Arms, Legs and Torso. As MDA's
National Ambassador, Luke travels the
Country with his Family, representing
the Association and the People it Serves.
Luke is in the Eighth Grade at Dixie High
School in Due West and is interested in
becoming a Reporter. He enoys Reading,
Writing and Boy Scouts, in which he's a
First Class Scout working on his Personal
Management Merit Badge.

JENI STEPANEK!!
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MDA NATIONAL VICE PRESIDENT!!!!

JENI STEPANEK- An MDA National Vice President,
Jeni Stepanek of Rockville, MD., will once again
appear on the Telethon. Stepanek is the Mother of
the Late Mattie J.T. Stepanek, Best-Selling Poet and
MDA National Goodwill Ambassador. She has an
Adult-onset Form of Mitochondrial Myopathy, the
Disease that claimed Mattie and her other Three
Children. Stepanek often Speaks Publicly to carry
forward her Son's Mission seeking Peace, Hope and an
End to Neuro Muscular Diseases. Mattie's Sixth and Final
Volume of poetry "Reflections of a Peacemaker;
A Portrait Through Heart Songs,' was Released last year.
A Second Book, "Just Peace:A Message of Hope,' a
Collection of Essays and Correspondence between Mattie
and President Jimmy Carter, hit Stores in March. Stepanek
recently moved into a new house facing the 26.2-Acre 'Mattie
J.T. Stepanek Park, Dedicated earlier this year by the City of
Rockville. Stepanek is an Author, Ph.D. Candidate and Faculty
Research Associate at the University of Maryland in Baltimore,
Studying Early Childhood Special Education."

MDA TELETHON 2006
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CELINE AND JERRY LEWIS!!

JERRY LEWIS!!!!
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MDA TELETHON 2006
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JERRY LEWIS AND JOHN LENNON!!!!!

MDA TELETHON 2006
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JERRY LEWIS AND RAY CHARLES!!!

MDA TELETHON 2006
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JERRY LEWIS AND ED MCMANN!!!

MDA TELETHON 2006
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MDA TELETHON
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JERRY LEWIS AND PEARL BAILEY!!

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IN HONOR OF HELEN KELLER!

MDA Telethon

Home | MDA Summer Camps | MDA Telethon | Jerry Lewis Biography | Christopher Reeves | Photo Gallery | Photos of Christopher Reeve | Contact Me | Guestbook | About Us

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On this Page, I will be displaying several Photos of Jerry Lewis's Muscular Dystrophy Association Telethon and a lot of Photos that are Associated with the MDA Telethon. I hope you enjoy all the Photos, and please come back often!!! I hope you are enjoying my Web Site!! It gives me special Pride and a Good Feeling in my Heart and Soul to Honor all these very special People!!!!
 
GOD BLESS JERRY LEWIS AND ALL THE GOOD THAT HE HAS DONE FOR MILLIONS OF PEOPLE AROUND THE WORLD AND GOD BLESS HIS FAMILY!!!!
 
GOD BLESS ALL OF YOU AND YOUR FAMILIES!!!! 

CAESER CHACON!
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ONE OF THE 2006 TELETHON FAMILIES!

CAESER CHACON - MDA Goodwill
Ambassador for Florida, 15-year-old
Caesar Chacon of Tampa, Fla., has
Limb-Girdle Muscular Dystropy, a
Genetic Degenerative Disease that
Weakens the Muscles around the
Shoulders and Hips. He uses a Power
Wheelchair. Caeser attends various
Events with his Family and Speaks on
behalf of the Association. He's in the
10 Grade at Tampa Bay Technical High
School and loves hanging out with
Friends, Talking on the Phone and
Playing Video Games.

CALVIN RAY JOHNSON!
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ONE OF THE CELEBRITIES OF THE 2006 TELETHON!

CALVIN RAY JOHNSON - Country Singer
Calvin Ray Johnson, 26, of Mt. Washington,
Kent., is Scheduled to Perform on The
National Broadcast of the Jerry Lewis Labor
Day Telethon. Johnson has Duchenne Muscular
Dystrophy and uses a Manual Wheelchair for
Mobility. Johnson is an Accomplished Singer,
Artist and Businessman. In June 2004, he
opened Calvin Raye's Live Music in Leitch Field,
where he and his Blue Moon Highway Band
Perform. He's Recorded Four CDs, Performed
in Nashville, and appeared on the 2001 and
2003 National Broadcast of the MDA Telethon.
Jonathan also Performed at the 2001 Academy
of Country Music's Celebrity Golf Classic in
Burbank, Calif. He's appeared on the Louisville
Broadcast of the MDA Telethon for Several Years.

JACOB RICHARD!!
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ONE OF THE 2006 TELETHON FAMILIES!!!

JACOB RICHARD - 2006 MDA Goodwill
Ambassador for Houston, 9-year-old
Jacob Richard of Sugar Land, Texas,
has Duchenne Muscular Dystrophy, a
Genetic Disorder Characterized by
Progressive Wasting and Weakness of
the Voluntary-or Skeletal-Muscles. The
Disease eventually affects the Heart
and Breathing Muscles. Jacob uses a
Wheelchair part time. As an MDA
Ambassador Jacob attends various
Events with his Family to Speak on behalf
of the Association. He's a Third-Grader at
St. Laurence Catholic School and loves
Reading, Singing, Swimming and Listening
to Music.

BRADLEY WALKER!!!
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PERFORMER ON THE 2006 MDA TELETHON!!!!

BRADLEY WALKER - Country Music Singer,
Bradley Walker, 28, of Athens, Ala., will
Perform Live on the National Broadcast of
the Telethon. In 1989, Walker was Profiled
on the Telethon, and Performed on the Show
in 2001 and 2002. He has Nemaline Myopathy,
a Metabolic Muscle Disease. Walker uses a
Power Wheelchair for Mobility. He's a Fixture in
the Bluegrass Community, and has Performed
at the Grand Ole Opry and was hailed as the
"Next Great Voice of Bluegrass Music" by
Bluegrass Unlimited Magazine in September 2005.
Walker's Debut Album, "Highway of Dreams," is
due out Sept. 12 for Rounder Records.

MDA TELETHON 2006
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HENNY YOUNGMAN!!!!

MDA TELETHON 2006
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JERRY LEWIS AND MILTON BERLE!!!!

MDA TELETHON 2006
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JERRY LEWIS AND SAMMY DAVIS, JR.!!!!

MDA TELETHON 2006
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JERRY LEWIS!!!

MDA TELETHON 2006
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ED MCMANN!!!!!!!!

MDA TELETHON 2006
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MDA TELETHON
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TONY ORLANDO!!!!!!!

TELETHON TOTEBOARD 2006
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TELETHON TOTEBOARD 2006
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JONATHAN CHACON!
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ONE OF THE 2006 TELETHON FAMILIES!

JONATHAN CHACON - 14-year-old
Jonathan Chacon of Tampa, Fla., has
Limb-Girdle-Mulcular Dystrophy. Like
his Brother Caeser, he uses a Power
Wheelchair. Jonathan is a Ninth-Grader
at King High School in Tampa and enjoys
Listening to Music, Watching TV, Playing
Video Games and Swimming. Both
Jonathan and Caeser attend MDA Summer
Camp.

ANDREW & JULIE KILBARGER(MOTHER)!
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ONE OF THE 2006 TELETHON FAMILIES!!!

ANDREW KILBARGER - Andrew Kilbarger,
9, of Lancaster, Ohio, received the First
Injection in MDA's Gene Therapy Trial for
Duchenne Muscular Dystrophy on March
28 at Columbus(Ohio)Children's Hospital.
The Trial will Test Six Boys with DMD. The
Disease begins in Childhood and causes
Weakness and Wasting of Voluntary
Muscles. In later Stages, it Weakens the
Heart and Muscles necessary for breathing.
"I'm proud to Introduce this Courageous
Family, whose Willingness to Participate in
the Early Trials of a Very Promising Treat-
ment is a Historic Contribution to MDA's Fight
against Duchenne Muscular Dystrophy, "MDA
National Chairman Jerry Lewis said." "Their
Story is sure to Inspire Telethon Viewers to
Support our Ongoing Lifesaving Research
Efforts."

AUGIE & LYNNE NIETO!!!
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ONE OF THE 2006 TELETHON FAMILIES!!!

AUGIE & LYNNE NIETO - Augie & Lynne Nieto
of Corona del Mar, Calif., are Co-Chairpersons
of The Muscular Dystrophy Association's ALS
Division. Augie, 48, received a Diagnosis of
Amyotrophic Lateral Sclerosis(ALS, or Lou
Gehrig's Disease)in March 2005. Augie is the
Co-Founder and Former President of MDA's
ALS Division, the Nietos help raise Awareness
through Public Appearances, Speaking Engage-
ments, Media Interviews and Public Service
Announcements. Augie also serves MDA as a
National Vice President. He has launched an
ALS Campaign with MDA called Augie's Quest,
which has raised more than $4 Million to benefit
MDA's ALS Division Research Program.

ABBEY UMALI!!!
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ONE OF THE 2006 TELETHON FAMILIES!!!

ABBEY UMALI - 2006 MDA California
Goodwill Ambassador, Abbey Umali,7, of
Redlands, Calif., has Dejerine-Sottas Disease,
a Neurological Disorder Characterized by Muscle
Wasting, Lack of Coordination and Some Loss of
Sensation in Upper and Lower Extremities. She's
Ambulatory with Braces. Abbey attends various
Events with her Family to Speak on behalf of the
Association. She's a Second-Grader at Loma
Linda Academy who loves Swimming, Riding her
Bike, Singing and Playing the Piano.

JERRY LEWIS PERFORMING!!!!
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GIG

MDA TELETHON 2006
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JERRY LEWIS AND ED MCMANN!!!!

JERRY LEWIS WHEN HE WAS YOUNG!!!!
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MDA TELETHON 2006
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MDA TELETHON
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JERRY LEWIS AND DEAN MARTIN!!!!!!!

MDA TELETHON
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JANE C. KRAKOWSKI!!!!

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Shirley Ruth Caron * 1221A Community Place * Indianapolis, IN 46227